About this blog

This blog has been transferred here from pregnancy.org where it was originally my journal. The dates in the title are the dates that the post was initially written. Start from the first and work you way to the last.

At this time, I have not finished transferring it fully, but I hope to soon!

Original journal link:
http://www.pregnancy.org/bulletinboards/showthread.php?t=3909

Tuesday, April 29, 2008

9/23/05

They found a hole in her heart. There was some technical term for this, but I can't remember. If I heard it again I'd know. Anyway, the nurse said it was fixable with surgery and it could be a whole lot worse. Her kidneys are still enlarged, but not out of normal range. They are just on the high side. The only really negative thing was that my placenta is a little small which is causing the cord blood pressure to be high. I didn't actually get into what that would mean, but I am seeing the doctor again next week. He is going to look at the heart more in-depth. Also, she is now measuring a full two weeks behind. I keep asking the nurse if I am not eating healthy enough or something. She keeps telling me that there is nothing that I did and nothing that I can do. I wish I could control something!

Now for the good news. They could find nothing wrong with her brain! Everything was there and everything looked good! I am amazed because abnormal brains are very common and even expected in T13 babies. The nurse also said that the results of the u/s were very "confusing" because they could hardly find anything wrong. Apparently no one told Keiran that she has trisomy 13. So, my little one is a fighter. I knew this already though.

Honestly, I'm now more scared than ever though. I am thrilled that things are working out so well, but I am so afraid that I am getting my hopes up for nothing. Given an 80% chance of miscarriage, I feel like we have already beat the odds getting this far. I'm too afraid to hope to beat the odds again. One day at a time. That's all I can do.

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